This past week I came to a decision and I shared my pretty drastic decision on my personal Facebook page; I wanted to share it here too, in a blog post…
Four years ago, my daughter, Olivia, underwent a three hour surgery, to remove a tumor from her eardrum and to reconstruct and graph a new one, as well as reconstructing her ear canal. During surgery, Olivia became dehydrated and her blood pressure bottomed out (VERY SCARY!!) Due to this trauma, Olivia developed an auto immune deficiency, which caused alopecia areata, a fancy term for hair loss.
We have tried everything, several different medications, and seen numerous physicians, but the loss of hair has persisted. I have had to cut and keep what little hair Olivia does have really short because of how much hair she has lost. She was 8 going on 9 when she had this surgery and now she is about to turn 14.
Recently, she has begun to notice my hair and to tell me that she wants long hair like me. Since that does not seem possible, short of a miracle, and I do believe in miracles, last Friday, I decided to have short hair like Olivia. I had 14 inches cut off into a pixie, and it’s the shortest my hair has been since I was 9 years old. I have had it short before, but not this short, and it has been 5 years, since I grew it out from the last short haircut. Now, I can say, “Look Olivia, I have short hair like you!
Getting paint and wax in my hair should no longer be a problem!
Olivia still has some of her hair, but has lost her eyebrows, and most of her front hair line with it being much further back on her head now, and she has a rather large bald place that starts at her crown, on the back of her head and goes all the way down to her neck.
We gave up all of the temporary fixes; if it isn’t permanent and it’s not giving her hair all over, then what is the point? Everything we did seemed to be fighting a losing battle because even if she began to grow hair in places it was steady falling out in others.
Up until now, it was more upsetting for me than it was for her. Olivia has Down Syndrome and is just a happy child no matter what… it always seemed so unfair to me, since she has already been through so much in her short life, beginning with open heart surgery when she was only four months old. Up until the surgery on her ear, Olivia had long beautiful dark brown hair. Three of my four children are all blonde like me, and Olivia’s dark brunette hair was just beautiful! She never seemed to let the hair loss bother her, up until recently, and I just want her to feel beautiful and not different… she has enough differences. Anyway, that’s our story… Olivia’s story.
LOVING LIFE, LOVING MY FAMILY, LOVING MY DAUGHTER!
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From my vintage life to yours,